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Parky for Parkinson’s Blog

This Is My Journey
April 18, 2024

#ThisIsMyJourney Chapter 13 – Maria de Leon’s Parkinson’s Journey

Maria de Leon is a neurologist specializing in Parkinson's disease. Her journey with PD began as a caregiver to her grandmother. Diagnosed in her 30s after three years of uncertainty…
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InformationUncategorized
April 10, 2024

New Feature Alert! Foggy: Cueing for Freezing of Gait

h2o Announces FDA Listing of Apple Watch-Based Cueing Feature 'Foggy' for Freezing of Gait in Parkinson’s Disease Parkinson's disease presents a myriad of challenges for patients and caregivers, with freezing…
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This Is My Journey
April 9, 2024

#ThisIsMyJourney Chapter 12 – Vikas Chinnan’s Parkinson’s Journey

Meet Vikas Chinnan, 48, whose journey with Parkinson's disease is marked by a profound search for answers. His story begins with a spinal cord infection during his adolescence, setting the…
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This Is My Journey
April 5, 2024

#ThisIsMyJourney Chapter 11 – Tanya Lesstrange’s Parkinson’s Journey

Tanya Lesstrange, 52, has been living with Parkinson's disease for more than 10 years. She was officially diagnosed in 2015 after initially being misdiagnosed with essential tremor in 2013. Despite…
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April 3, 2024

Freezing of Gait in Parkinson’s Disease

Freezing of gait (FOG) within Parkinson's disease remains a mysterious and often perplexing phenomenon. This puzzling symptom presents tough challenges for patients, caregivers, and clinicians as well. Drawing attention to…
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This Is My Journey
March 28, 2024

#ThisIsMyJourney Chapter 10 – Mark Milow’s Parkinson’s Journey

This is Mark Milow's Parkinson's journey, whose life took an unexpected turn several years ago with a diagnosis that changed everything. When Parkinson’s became a part of Mark’s life, it…
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March 6, 2024

Parkinson’s Disease in Women: Symptoms and Experiences

Parkinson's disease, often portrayed through the trembling hands of an elderly man, has long suffered from a narrow public image. This limited perception, however, fails to capture the full spectrum…
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March 1, 2024

How the Apple Watch App for Parkinson’s Can Improve Daily Life

Living with Parkinson's disease poses numerous challenges. It impacts daily routines and overall well-being. From managing medications to monitoring symptoms, individuals with Parkinson's require constant attention and support. However, with…
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February 14, 2024

Parkinson’s Impact on Intimacy: Love Life with Parkinson’s Disease

Living with Parkinson's disease (PD) is a journey for not just the person diagnosed, but for their loved ones as well. The disease throws shadows onto various aspects of life,…
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Information
February 3, 2024

Istradefylline (Nourianz), Adenosine A2A Receptors, and Their Role in Parkinson’s Disease

Parkinson's disease is a neurological disorder that affects millions of people worldwide. It's characterized by motor symptoms like tremors, stiffness, and bradykinesia (slowness of movement). While there's no cure for…
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February 3, 2024

Is there a test for Parkinson’s? What is DaTscan?

Is there a test for Parkinson’s disease diagnosis? Parkinson's disease (PD) is a complex condition that can be challenging to diagnose accurately. Currently, there is no test available to conclusively…
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Information
February 2, 2024

What Worsens Parkinson’s Disease? Tips for Effective Management

Parkinson's disease is a progressive neurological condition affecting millions worldwide. While there is no cure, understanding the factors that can worsen the disease is crucial for effective management. We'll explore…
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February 2, 2024

Bradykinesia: Understanding Slowness of Movement

What Is Bradykinesia? Bradykinesia, pronounced as bray-dee-ki-nee-zee-uh, is a medical term describing slowness of movement. It's a central feature of Parkinson's Disease. The word is derived from two Greek words:…
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a documentary on young onset parkinsons disease the only day we have on parky blogMedia
February 2, 2024

The Only Day We Have: A Film On Young Onset Parkinson’s

Parkinson's disease affects millions worldwide, and young onset Parkinson's is an often-overlooked form of this condition. "The Only Day We Have" is a heartfelt documentary created by Allan Cole and…
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What is early onset parkinsons disease. Progression and ImpactInformation
February 2, 2024

What is Early Onset Parkinson’s Disease?

Parkinson's disease (PD) is often linked to aging, but it can also appear earlier in life as Early Onset Parkinson's Disease (EOPD), also known as Young Onset Parkinson's. What Is…
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Information
February 2, 2024

What is Parkinson’s Disease? Understanding the Symptoms and Its Implications

Whether you're a newly diagnosed patient or a caregiver, you might be feeling overwhelmed, uncertain, and perhaps a bit scared as you step into the territory of Parkinson's disease. This…
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Information
February 2, 2024

What is dyskinesia? Can self-tracking help?

Dyskinesia, a challenging aspect of Parkinson's disease, can significantly impact the lives of those affected. As it is closely tied to medication treatments, self-tracking could aid in optimizing treatment plans.…
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Media
February 1, 2024

Fighting Against Parkinson’s – Rock Steady Boxing

Living with Parkinson's disease presents its challenges, and as we navigate through emerging therapies, various options offer hope for individuals on this journey. One such option is Rock Steady Boxing…
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Michael J Fox image on parkky for parkinsons blogNotable Figures
January 26, 2024

Michael J. Fox: 30-Year Parkinson’s Journey and Resilient Positivity

Michael J Fox, the 62-year-old 'Back to the Future' star, fighting Parkinson's for over 30 years, remains resolute in maintaining a positive outlook, as evident in his interviews discussing his…
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A scene from the movie Awakenings with Robert De Niro and Robin WilliamsMedia
January 25, 2024

Awakenings (1990): A True Tale of Hope, Parkinson’s, and Miracles

Penny Marshall’s drama Awakenings (1990) centres on Dr Malcolm Sayer (Robin Williams) and his patient Leonard Lowe (Robert De Niro). In the film, Sayer uses a drug designed to treat…
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People decorating christmas tree with the text jingle with parkinson's
January 25, 2024

Jingle with Parkinson’s: A Christmas Guide

The holiday season has the potential to be both delightful and demanding! Preparation can alleviate worries and contribute to a seamless festive experience. Let's look at some tips and tricks…
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A Parkinson's disease patient Sharon Krischer sharing her experiences with Parky blog named this is my journeyThis Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 9

She’s Sharon In 2009, Sharon Krischer received a Parkinson's Disease diagnosis. Since then, she's dedicated herself to supporting others affected by the condition, striving to help them find a way…
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Thanksgiving feast with candle lights and Turkey, with the caption of Parkinson's disease edition for thanksgiving tableMedia
January 25, 2024

Parkinson’s Edition for Thanksgiving Table!

At 3 p.m., you've recently indulged in a Thanksgiving turkey feast. How are your Parkinson's indicators? Experiencing a greater sense of deceleration? Observing heightened tremors? Sensing increased rigidity? It could…
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Harrison Ford and Jason Segel from the series Shrinking as a recently diagnosedMedia
January 25, 2024

“Shrinking – A therapist newly diagnosed with Parkinson’s” 

A Comedy with Depth - Exploring Life, Grief, and Parkinson's with Harrison Ford This comedy, created by Bill Lawrence, Brett Goldstein, and Jason Segel, showcases Harrison Ford as a  wise,…
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A young onset parkinsons disease patient sharing her experiences on parky for parkinsons blog this is my journeyThis Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 8

Safa's story is one of resilience, strength, and unwavering determination. Diagnosed with Parkinson's at the tender age of 14, she faced a world that often misunderstood her struggles. Her journey…
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Parkinson's disease filmmaker David Plummer's quote on Parky for Parkinson's blog this is my journeyThis Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 7

Can you share your initial thoughts and feelings after watching the film? What were your impressions and emotions as you experienced it? After watching the film, it came together quite…
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An image of the clapper of the movie Ecstasy, on Parky for Parkinson's blogMedia
January 25, 2024

“Ecstasy”

A Parkinson's Comedy - A Father and Son's Joyful Adventure Short Comedy Drama Film 2021 | 18 mins  Production Company Bright & Colourful A young filmmaker, Grant Taylor, brought the story…
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An image of David Plummer from the documentary "Shaking hands with the devil" on parky for Parkinson's blogMedia
January 25, 2024

“Shaking Hands with the Devil”

David Plummer: Documenting Parkinson's Stories in Kenya  This touching documentary follows David Plummer, a well-known wildlife photographer, environmentalist, bestselling writer, and motivational speaker, as he copes with Parkinson's disease. Join…
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Close shot of a blue eye with a target in the middle, for Parky for Parkinsons blog
January 25, 2024

AI’s Pioneering Role in Parkinson’s Detection

Scientists report that AI eye scans can spot Parkinson's disease seven years before symptoms. Through the analysis of eye scan data and the application of machine learning, scientists have validated…
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An image of John Cullen from the documentary "It's Just Parkinson's"MediaNotable Figures
January 25, 2024

“It’s Just Parkinson’s”

From Athlete to Warrior: John Cullen's Fight Against Parkinson's “It’s Just Parkinson’s” is an inspiring documentary that follows JOHN CULLEN, a 62-year-old resident of Florida, as he faces Parkinson's disease…
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This Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 6 – Matt Eagles

As the founder of ParkyLife, your constant smile and boundless positivity continue to inspire many. What motivated you to start ParkyLife, and how has it positively affected the Parkinson's community? …
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January 25, 2024

Age is Just a Number: Parkinson’s Fighter Rockets to Space

Despite being diagnosed with Parkinson's, a Virgin Galactic ticket holder, 80-year-old Jon Goodwinn, is getting ready to become one of the pioneers of paying space tourists. Jon Goodwin, an 80-year-old…
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This Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 5

What should society/the loved ones/caregivers/do to make life easier for a PwP?  Be there to support their loved ones. It takes sacrifice, and the caregiver will likely feel as though…
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January 25, 2024

Love and Other Drugs – Mental Health in Parkinson’s Disease

"Love and Other Drugs" is a 2010 Hollywood film that follows the lives of Jamie Randall and Maggie Murdock. Set in 1990s Pittsburgh, the movie tells the story of a…
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January 25, 2024

A Virtual Lifeline – Online Gaming and Parkinson’s Disease

How An Online Game Transforms Lives Affected by Parkinson's Disease If you're seeking an extraordinary and uplifting story from the virtual realm, look no further than the captivating documentary machinima…
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January 25, 2024

The connection between Vitamin D and Parkinson’s Disease

Parkinson's disease is one of the most prevalent neurological conditions, primarily affecting the elderly. As individuals age, they exhibit symptoms such as tremors, difficulties with balance, and slowed movements, which…
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January 25, 2024

How Self-Tracking Empowers People with Parkinson’s

From Patient to advocate: how self tracking is empowering parkinson's patients If you're reading this, you may be someone with Parkinson's disease (PwP), or you may know someone who has…
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January 25, 2024

Can Your Selfie Predict Parkinson’s Disease?  

Artificial Intelligence enables researchers to accurately detect signs of Parkinson's disease by analyzing facial muscles. At the University of Rochester, Ehsan Hoque and his team have developed computer vision software…
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Notable Figures
January 25, 2024

Movers & Shakers: Careers & Parkinson’s journeys united

They are united by two things: their fascinating careers and having Parkinson's disease. “Movers & Shakers”  Six friends, all well-known in their careers, have come together for a special reason:…
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Notable Figures
January 25, 2024

Unbreakable Bond: Sharon & Ozzy Face Parkinson’s

Sharon Osbourne shared her struggles witnessing her husband, Ozzy Osbourne's health decline due to Parkinson's disease, highlighting its profound impact on his life.  Ozzy Osbourne closes Commonwealth Games shouting 'Birmingham…
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Notable Figures
January 25, 2024

Life’s Irony: Parkinson’s Hits Physician-Scientist

In a cruel twist of fate, decades of dedicated research on Parkinson's disease have led a prominent physician-scientist, Tim Greenamyre, to face the illness he has devoted his life to…
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Media
January 25, 2024

Be Prepared! Tips for your neurologist visit

Make every second of your Neurologist appointment count! With longer wait times and shorter visits, being prepared is essential. Read on for tips on how to get the most out…
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January 25, 2024

Michael J. Fox: Hollywood to Parkinson’s

Moving on to the movie of the week: the newly released movie: STILL by Michael J Fox. Witness his remarkable journey from an army base kid to Hollywood stardom, all while facing…
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Media
January 25, 2024

The Stutz Method: Mastering Mental Health with Jonah Hill Amidst Parkinson’s

In the world of mental health and personal growth, few stories are as compelling as that of Dr. Phil Stutz, a renowned psychiatrist who has not only shaped the lives…
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Notable Figures
January 25, 2024

Inspiring Athletes Parkinson’s Can’t Stop: Brian Grant and Davis Phinney

Famous athletes Brian Grant and Davis Phinney, both diagnosed with Parkinson's disease, have founded Parkinson's foundations and inspired others to lead active lives despite their condition. In the world of…
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January 25, 2024

‘My Burger Eats My Levodopa’: Protein timing and Parkinson’s medication

Nutrition plays a significant role in managing Parkinson's disease. While it cannot cure the condition, a healthy diet can support overall health and alleviate some symptoms. The absorption of PD…
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January 25, 2024

The Unseen: “This is not a ‘funny walk,’ and I’m not drunk.”

"Did you know that People with Parkinson's face prejudice that makes them hesitant to socialize or go out? It's a harsh reality that needs more attention." People with Parkinson's disease…
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Exercise
January 25, 2024

Barefoot Exercising for Parkinson’s – Kick Off Your Shoes!

  The best communication between your feet and brain happens when you are barefoot, so take off your shoes to enjoy the full benefits of these exercises! We were born…
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This Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 4

What should society/your loved ones/your caregivers/your friends do to make life easier for a PWP (person with Parkinson's)?  A diagnosis of PD is usually highly disruptive.  So it will be…
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This Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 3

What should society/your loved ones/your caregivers/your friends do to make life easier for a PWP (person with Parkinson’s)?  We should not be seen as patients but as regular, healthy people.…
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This Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 2

What should society/your loved ones/your caregivers/your friends do to make life easier for a PWP (person with Parkinson's)?    Understand that people with PD sometimes have days when they need a…
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This Is My Journey
January 25, 2024

#ThisIsMyJourney Chapter 1

Today is World Parkinson's Day. As of today, 4Parkinson's Community will be sharing insights from People with Parkinson's, caregivers, healthcare providers from all over the world. Everybody's journey with Parkinson's…
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Media
January 25, 2024

Valerie – a Parkinson’s Documentary on the Hollywood Star

"I didn't want the world to think I just faded away. I have Parkinson's." -Valerie Perrine. Actress Valerie Perrine opens up to the world about her journey after she was…
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Muhammad Ali as a Parkinson's disease fighter on the ringNotable Figures
January 25, 2024

“Don’t count the days, make the days count.”

Muhammad Ali, known as "The Greatest," was not only a legendary boxer but also an inspiring figure in his battle against Parkinson's disease. Ali's extraordinary life story is one of…
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Media
January 25, 2024

The Long Road to Hope: Ending Parkinson’s Disease

Lend an ear to twelve incredible individuals with Parkinson's and witness their journey. "The Long Road to Hope: Ending Parkinson’s Disease" is a documentary that takes us into the lives…
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